Day One at UAB is coming to a close.
It's amazing what a difference a day makes.
It's really amazing what a difference sleep makes.
He slept last night for the first time in days.
He's had an appetite today for the first time in days.
He's felt better than he has in days.
It's days like today that could
make you question a grim diagnosis.
We haven't, but he's felt that good.
I don't want you to think we are all
sitting around in denial, because, we're not.
It's just, he's had a good day.
I mean, a really good day, and a productive day.
It's amazing what a difference a day makes.
It's really amazing what a difference sleep makes.
He slept last night for the first time in days.
He's had an appetite today for the first time in days.
He's felt better than he has in days.
It's days like today that could
make you question a grim diagnosis.
We haven't, but he's felt that good.
I don't want you to think we are all
sitting around in denial, because, we're not.
It's just, he's had a good day.
I mean, a really good day, and a productive day.
He had a Hickman placed today.
We are really thankful to have it so
he doesn't have to be stuck over and over.
We met with the Dietitian this morning.
He is on a special diet because of his low WBC.
The basic jest of it.....
*no undercooked meat
*no fresh vegetables
*no thin-skinned fresh fruit
*no meringue
*no fountain drinks
*no soft serve ice cream
*no buffets or salad bars
Bottom line, it needs to be processed,
pasteurized, etc., because his WBC is so low.
We can't take a chance on him catching a bug,
as he has no cells to fight it off, like you and I do.
We also met with his Doctor
to figure out where we go from here.
He has the option to have standard induction
chemotherapy or participate in a trial drug study.
His Doctor at the previous
hospital sent us to UAB for the trial drug.
We feel like that is the way to go, but we are praying
for wisdom and guidance to make the right decision.
Even in the trial, there's no
guarantee he will actually get the study drug.
It is a completely computer randomized
determination and can't be manipulated.
That's just part of doing a trial.
50% get the standard regimen, the other 50% get the trial drug.
They told us the standard regimen is
the worse of the two, as far as side effects.
We want what's best for him and
what will give him the highest survival rate.
So, we ask you to pray specifically that
whichever chemo he needs, that is what he will get.
Thank you for all your love, support and prayers.
Keep 'em coming.
We need them.
Love you MUCH!
=],
He is on a special diet because of his low WBC.
The basic jest of it.....
*no undercooked meat
*no fresh vegetables
*no thin-skinned fresh fruit
*no meringue
*no fountain drinks
*no soft serve ice cream
*no buffets or salad bars
Bottom line, it needs to be processed,
pasteurized, etc., because his WBC is so low.
We can't take a chance on him catching a bug,
as he has no cells to fight it off, like you and I do.
We also met with his Doctor
to figure out where we go from here.
He has the option to have standard induction
chemotherapy or participate in a trial drug study.
His Doctor at the previous
hospital sent us to UAB for the trial drug.
We feel like that is the way to go, but we are praying
for wisdom and guidance to make the right decision.
Even in the trial, there's no
guarantee he will actually get the study drug.
It is a completely computer randomized
determination and can't be manipulated.
That's just part of doing a trial.
50% get the standard regimen, the other 50% get the trial drug.
They told us the standard regimen is
the worse of the two, as far as side effects.
We want what's best for him and
what will give him the highest survival rate.
So, we ask you to pray specifically that
whichever chemo he needs, that is what he will get.
Thank you for all your love, support and prayers.
Keep 'em coming.
We need them.
Love you MUCH!
=],
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